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hear ye
hear ye
I played Like a Dragon with no background and it was a great experience. Really wacky in a satisfying way. Only grievance is there is ~10 hours of cut scenes to beat the game.
Justified hate for EA aside, I really don’t mind unobtrusive product placement in games or media. Take The Boys for example, they have heavy product placement in the show (Fresca, Kraken rum, Adidas, etc.) but it didn’t detract from the narrative and I think the casual viewer didn’t even notice it.
I have no faith whatsoever EA will be able to keep themselves from hamfisting ads in the player’s face, but I am not categorically against the idea.
I commented this elsewhere, but to answer your question,
Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production. It’s also a one time injection that functionally cures the person of the disease. There are a couple other options but for comparison, the other therapeutic is Spinraza which is an intermittent intrathecal infusion which is $805,000 for the first year of therapy and $380,000 per year thereafter for the rest of your life.
SMA type I also is 100% fatal by year 2-3 and the baby dies without being able to even lift their head. It’s a terrible prognosis.
To be clear, I think we should bear the actual costs of research, development, and manufacture as a society and not profiteer off the sick, but there are some contributory reasons for the price.
Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.. It’s also a one time injection that functionally cures the person of the disease. There are a couple other options but for comparison, the other therapeutic is Spinraza which is an intermittent intrathecal infusion which is $805,000 for the first year of therapy and $380,000 per year thereafter for the rest of your life.
To be clear, I think we should bear the actual costs of research, development, and manufacture as a society and not profiteer off the sick, but there are some contributory reasons for the price.
Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.
No one has given you an actual reply just assuming that the manufacturing costs for the drug are low. Zolgemsma is a modified version of adeno associated virus and has to be grown under specific conditions. It costs $500k-$1m per production.
Nethack is like the Jumanji of games. You finish it by introducing someone else to it.
You absolutely must play Doki Doki Literature Club if you have not. It’s free. Do not look up spoilers or be put off by the type of game or the setting. Just play it.
P.S. - “Doki Doki” the way you write the sound of a heart beating in Japanese akin to “lub dub” in English.
Yes, without a warrant. It’s in the Privacy Notice in any retail pharmacy.
Impersonating a cop is a pretty big step that’s illegal in its own right but we did have moms trying to see if their adult daughter was on birth control, but that’s pretty easy to stop. Just lock their profile and ask the patient to make up a passcode or only deal with them in person.
Yeah, I didn’t say any of that but ok. HIPAA/employers actually require you to give law enforcement information in a variety of situations, including specifically the situation I mentioned:
To report PHI that the covered entity in good faith believes to be evidence of a crime that occurred on the covered entity’s premises (45 CFR 164.512(f)(5)).
HHS - When does the Privacy Rule allow covered entities to disclose information to law enforcement
I worked at a pharmacy and the only time it actually happened was when a patient tried to sell their Vicodin to an undercover cop outside the store. The cop came in and asked for the information about the prescription and we gave it to him.
The HIPAA Privacy Rule exception for law enforcement purposes, 45 CFR § 164.512(f), permits a covered entity (generally, healthcare providers, health plans and their business associates) to disclose PHI to law enforcement officials without patient authorization under certain circumstances.
Those pharmacies also have this exception listed in their Privacy Policy. I don’t like it either, but it is legal.
I once got Lufia II for SNES for $5 from Blockbuster. Absolutely amazing game and I still have it!
I recently found out about the Zelda: Link to the Past randomizer community. Essentially there is a method to modify the original game to randomize the item locations and other aspects of the game while ensuring the game can be completed. Each game has a seed so you can look it up if you get to stuck. I played through it once and it was a really interesting challenge since I didn’t get the bow until 60% of the way through the game.