I stopped taking my seizure meds for a few weeks.

When I was living with my ex, going off the meds resulted in seizures within the next few days. I mean grand mal, unconscious for a few minutes and post octal phase where I have zero idea what is going on (one of the most terrifying feelings you can have honestly) I’ve been living on my own for a few years now, and gradually halfed my dose for financial reasons.

For the past <month I’ve been entirely off.

Maybe this is weird. But at one point there was a few days where I had left my meds somewhere else after staying elsewhere a few days, and was worried about driving, and he said: “don’t worry, you aren’t going to have a seizure.”

  • Björn Tantau@swg-empire.de
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    2 days ago

    My friend got a sign from God that he shouldn’t go to church. He didn’t often go to church anyways, but his parents forced him on christmas. But not a minute after being in he collapsed on the ground with seizures.

    Some might say it was the stuffy air in a small hall with hundreds of people and maybe bright lights after coming in from the dark winter evening. But we think it was a message from God.

    • Xella@lemmy.world
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      2 days ago

      I have grand mal and complex partial seizures. When I have the partial seizures I swear I’m getting a message from somewhere or that I can see the future… then a grand mal happens sometime after. Your friend might’ve had a different type of seizure that led to the grand mal happening at church.

      I remember one time I had about 50 complex partial seizures in one day and I was convinced I was seeing the future in my dreams. They made me so tired that I just laid down for a nap. The second I closed my eyes I started having a grand mal. I didn’t even know I had epilepsy on that day lol, I was driving around my car and everything.